I said, ‘What about me?’
He said, ‘You only eat small snacks.’
I said, ‘Give me cake.’ He did.
Today we
also stopped for lunch in a village cafĂ© … They said we needed lunch because we
needed to build our strength for the next visit…. I will explain.
We’re here
to help the team with an action research project exploring ways Global Care might support children with disability (CWD) to access education. They’ve identified 19 children to take part in
the study and visited them all at home. I collated the data back in the UK and
Tom summarised the findings. The UK management team looked at the results and we
are starting the next phase. The team need to visit schools and put together an
action plan – a proposal with options and costings. We left the UK with open minds – you never
quite know what you’ll find ‘on the ground.’ Yesterday we spent a couple of
hours reviewing the work so far and deciding what to do next. The Ugandan team
wanted us to visit some homes to meet the children and understand a bit
about the location of their homes, and visit schools to discuss their approaches to CWD.
We
quickly realised that most of
the 19 children live miles apart - and several Km from the nearest school. Yesterday we visited 3 children and 2 schools –
we left the office at 11.30am and arrived back at 6pm! We drove for miles and
when paths became too small, we walked. Because of the rain it was muddy and
slippery. We had a sad visit to a very disabled child and happy visits to children
we’re sure could get to school with help with transport. We even found a school
with a section for disability.
Today we left town
at 9.30 and took the main track towards Queen
Elizabeth Game Park, North West of Rukungiri. The dusty rough road goes for
many miles, climbing up and up through a forest. The mass of vegetation
includes eucalyptus trees, pampas grass, pine trees, spear grass, mango trees
and many others we don’t recognise. Small children run or walk along the road
alone, often barefoot. As we continue, we see fields of coffee, matoke, sweet potato and the bright orange flowers of flame trees vividly breaking the monotony of the greens and
browns of earth and homes. After 1 hour we arrive at a small town, Bwambara.
People are everywhere as it is market day. Coming out of town the road narrows
and we can see the Savannah of the Game Park in the distance. After another 10
minutes we turn off again onto a narrow track. If it rains this ‘road’ is
impassable. The track becomes a path, just wide enough for the van, and we have
arrived.
The boy we
have come to see (we’ll call him John), comes running over as he sees us. He’s
limping and holding his arm awkwardly. He has hemiparesis. He goes to the local
school which is on the next field.
People come over to talk to us. We learn that the Game Park plays a huge
part in the lives of families in this community. They are afraid of the elephants which eat
their crops and trample farms and buildings. John’s family live in a very
simple house. The area is incredibly poor – it is so far from towns that it is
neglected – the health clinic has no supplies, the school expected government
teachers but they have not arrived so the parents have to pay the teachers
which makes school fees expensive -£6/ term. The nearest government school fees are £1/term
but is too far away for John to reach without transport – which no-one
can afford.
Most of the adults in the village are uneducated beyond a very basic level – their grandparents
didn’t go to school at all. Education is not a priority. Families depend on
agriculture. The area is the hottest and poorest in the district – but during
last year’s severe drought they had no government support. Children didn’t go
to school because there was no money. The villagers have always followed the ways of
their grandparents who lived in the bush – education is a new concept. Moses said, ‘They haven’t worked out a
relationship with schools.’
John has 8
siblings (4 others died). His father has 2 other wives, one wife has 15
children, the other has 12. There is very little money to go around so
education will not be a priority. The village school only takes children up to
Primary 3 – what will happen to John after that? He won’t complete village education
unless there is help with fees – his father can’t afford £6/ term when he has
35 other children to think about, and he can’t afford transport to send John to
the cheaper school. It is fantastic that John can go to school now – but he
often runs away and goes home if there is no-one there to send him back. The lovely young Deputy Head told us they are
working with John and his family to improve the situation and his behaviour has
improved, he is learning well and his hygiene is improving.
After we’d
seen John, we spent half an hour in the van travelling to meet a 4-year-old who was
completely terrified of our white skins and wouldn’t stop screaming… In these
remote villages many people have never seen a Mzungu. A Head Teacher told us he’d
never talked to a Mzungu! This child had paraplegia and lived in a village on a
hill with vey rough terrain. After another 40 minutes in the van we visited a CWD
at school – a huge rambling school on a hillside. We’ll call him Stephen. Stephen
has been at school for a year and is doing very well – he’s ahead of others in
his class. But… he’s always late because it takes him so long to walk to school
(3.5Km) on his deformed leg. And after 40minutes drive we walked up an
incredibly steep narrow path to meet a lovely little girl with Spina Bifida.
She was sitting happily eating lunch when we arrived – but she has medical and
physical problems that need resolving before we can even think about how she’d
get to school.
We stood
outside this last house and looked out over the distant hills and mountains.
The lush hillside forest beneath rustled in the slight breeze. It was truly
beautiful. But for these children, the
outlook is harsh. Once again, this time
in the context of children living with disability in incredibly remote and
difficult environments, we can only refer to the Global Care ‘motto’, ‘We can’t
do everything, we can’t do nothing, we must do something.’
Really powerful knowledge thanks for sharing please continue to care for yourselves in this painfully impoverished environment much love X
ReplyDeleteThanks Matey xx
Deleteamazing stuff you're doing....just when you thought you knew a little about someone they just blow you away with what they are doing with their lives...good on you
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