Showing posts with label disability is not inability. Show all posts
Showing posts with label disability is not inability. Show all posts

Thursday, 9 January 2025

Please can I play?

 A trip to Uganda in 2008 changed my life – seeing overseas projects first-hand and meeting the local partners who plan and run the programmes, gave me a fresh appreciation of Global Care.  More importantly, I realised that my notion of ‘charity’ and my understanding of development work were based on old-fashioned ideas of the rich helping the poor. My eyes were opened to the concept of respectful collaborative partnership working – and community led initiatives. Privileged to visit more overseas projects, to volunteer in different capacities, and receive training, I’ve been challenged, enriched, stretched and encouraged.  

The Children with Disabilities (CWD) initiative, started in 2018 in Rukungiri, Uganda, aimed to assist children with mobility impairments to participate fully in school education. As volunteers, Tom & I visited Rukungiri, to support Moses and Penlope, the local team, with project management. Some of the children had started school, but most didn’t go regularly and arrived late if they did manage to limp or crawl to school or be carried by a parent. 

On our first visit in March 2019, the children were mostly at home. Their parents tried hard to support their disabled children, but living in remote impoverished communities, with minimal access to healthcare, most children were isolated with no chance of an education. Many were rejected by their communities. Moses and Penlope worked to support these children despite the covid pandemic. Accessible toilets were constructed at four schools, and children were supported by provision of mobility aids and transport to school. 
Fast forward five years, and most are in education, travelling to school on bicycles provided by Global Care. The project has ended, but Moses and Penlope keep in touch with the children where possible. They are invited to join in with central celebrations at the Rukungiri office. The local team are confident that 11 children will continue attending school, this is partly due to the economic stability provided by donated livestock as these can be sold as they breed, in order to cover costs of school fees and family emergencies in the future.  

It’s December 2024. With Steve, Head of Operations at Global Care, and David Oumo, Acting Uganda Country Manager, we’re helping to lead a trip to Rukungiri to run four days of children’s activities. There are 11 on the team, including David. It’s hot… it’s only 8.30am and it’s roasting. Our bus drives onto the school field and I’m relaxed, glad that after a good debrief last night, we have a revised plan for our second activity day. Children begin to gather and as we park the bus, several rush over. We climb off the bus and unload some sports kit. Before long the field is full of children kicking footballs, throwing netballs, skipping, and playing games with hoops. I do my usual scan to make sure all the children are involved in something, and my eye is caught by four young children sitting under the marquee.  

I walk over, and feel my mouth breaking into a huge grin, my eyes are damp… I know these children. I shout, “Hello!” … and they glance across.  What if no-one remembers me? I’m waving frantically, and then I see a smile spreading on *Bowen's face.  I try to remember all their names. There’s *Frida, a lovely girl with a marked scoliosis of her back, she must be about 12 now, she proudly showed me her end of year exam results in December 2019. I’ll never forget *Bowen and his cheeky laugh – I watched him walking with an adapted walker five years ago – he’d hardly left his home. Now I know he’s at school. I spot *Michael. Left at home alone while his parents worked in their fields, I’ve never seen him smile and he was shy and afraid when we visited him. Penlope comes over, that’s *Abel, she says, he was a baby when you met him, just 2, do you remember? Yes, I can see the crying toddler hiding in his dad’s arms.  

Tom comes over and starts organising games with the children. He calls their mothers over and sets them throwing beanbags through a hoop seated on their chairs. The giggles start. They get really good at it. Moses appears with a brightly coloured mat. Time for some different games. The children move to the mat, and we start more throwing and catching games. Tom sets up a seated game of ‘volleyball’.  

Then my heart literally leaps, I’ve spotted *Timothy, walking towards us. Timothy sees me and breaks into a grin.  I’m going to have trouble keeping my emotions in check today.

I first saw Timothy sitting on the floor at a back of a school classroom.  Through the disability project, an accessible toilet was built at Timothy's school (and another block of latrines for all the children), Timothy was given a special chair with a desk so he could write and be alongside his peers. On our second visit, 9 months later, Timothy calmly got out of his chair, walked to me, and gave me a massive hug. 
After a short time playing with us on the mat, Timothy gets up. He’s seen his friends, *Marvin, and two other boys, *Emmanuel and *Elliot playing football with Clive and Zara. Emmanuel has a new lower leg prosthesis! My smile is pulling at my face, this is incredible.  

The children on the mat are joined by *Grace, another child I never expected to see walking and interacting and laughing. As the children break into groups and go off to do crafts with Clare and Cathy, I’m delighted to spot *Tracey joining the dancing snake heading for the classroom. Throughout the day the UK team make sure the younger children are included in all the activities. I stay with them and ask for a teacher to translate. We do jigsaws, they make paper angels and jingle bell bracelets, when there’s singing and dancing, we do our best to join in.
I get out my finger puppets and we descend into a giggling mass – helped by a teacher who throws himself fully into the activity.

When the play parachute comes out, we make sure all the children are included. I can’t stop smiling... and half crying, as the five children go under the parachute, shrieking and laughing as they reach up to catch toys falling through a central hole.  

At the end of the day, the children receive certificates of attendance and are covered in stickers! I am overwhelmed with gratitude for this project. In 2019, the extent of the children’s isolation, untapped potential and lost opportunity was devastating. Today they are fully integrated, relatively independent children. Some are doing really well at school. The severely disabled children are laughing, interacting, and their mobility has improved tremendously.  Able-bodied children have helped their disabled peers throughout the day – in lots of different ways.  No stigma. This is without a doubt the best trip I’ve been on, so much change in just 6 years, hope and a future for children who were lost in darkness.  Thank you, Global Care, you have my appreciation and admiration for how much can be achieved with so little.  

*Names changed to protect children's identity.


Saturday, 9 November 2019

You can't get away from the B word

T. S. Elliot wrote 'We shall not cease from exploration, and the end of all our exploring will be to arrive where we started and know the place for the first time.' I'm inclined to agree. 

The second part of our journey was relatively painless. We left at 8.15 after a solid sleep and an excellent breakfast. We'd have slept anywhere - which was just as well - staying overnight in Uganda is properly noisy!

We made good progress until Mbale where a University graduation brought gridlock. The traffic situation wasn't helped by roadside photographers and people selling what appeared to be plastic bouquets, tinsle garlands, and commemorative heart medallions (think A4 size), who were hawking through car windows at any opportunity. I slept most of the journey... My body doesn't know either the day or time! 
We arrived in Soroti at 11.15 and headed for the hotel. Its always nice to recognise hotel staff but particularly great to be greeted with big smiles & by name. 
David & Fred the joint Global Care managers arrived and after a good catch up we started planning our week. Discussions continued over lunch & into the early afternoon! We've got a rough daily plan, and we're remembering how much extra work we bring along with our help. On Monday we're meeting the Abeko Disability Support Group, but of course there has to be a gathering and lunch because we're here. There will be speeches and reports... 

Tomorrow we're going to church in the morning and in the afternoon prepping for Monday. In case you're wondering, I've lost a case before, so my rucksack had essentials (like malaria pills) and 2 changes of clothes. In the office and villages I wear long skirts or dresses so come equipped for potential lost cases. We're thanking God for Tom's case arriving... It had his special dietary foods. I've learnt before not to complain about things I miss (white woman's shampoo & conditioner, the luxury of several changes of underwear and clothes), I'll meet plenty of people this week whose entire personal possessions are less than my case contents. I'll be sad if the children's presents don't arrive on time.

However, I've mislaid my precious Watertogo bottle.. A water bottle with a inbuilt filter. I think it fell out when we were rushed through security in Dubai. I hate buying plastic bottles of water but hopefully I'll find a simple water bottle and can decant boiled water or from large bottles. Water is still an issue here. Towns have piped water.. But not to all areas and not drinking water. Some villages have wells or springs but most rural families still have to make time every day to fetch & carry water. I'm lucky. I can afford bottled water. Tom has his filter. We're a Minority. Already we're thinking about the injustices and inequality for many people here. There's no escaping it.

There's also no escaping Brexit. It was one of the first things we discussed in our meeting. That and climate change. There's no escaping the effect privileged people's decisions have on the world's poor. Now I'm off to buy a drink & food and reflect on my western wealth and entitlement, and as Tom pointed out, power.